This past week has been a huge eye opener for me. I have learned things about people who I thought were good friends that maybe they arent and then learned that people I hadnt really thought of as very good friends are.... It's a very interesting change of events. I am finally to a point in my life where I just dont want to have the drama any longer. My family doesn't need and neither do I. It saddens me to think that I have been very close to someone for a while and find out that maybe they are not who I originally thought.
But on a different note, my nephew Maverick is starting the path on his heart journey. He finally went in for his open heart surgery today, and we are hoping that all goes well. He is such a strong little guy. The surgery ended up getting started late, and he really didnt cry all that much at all. My heart goes out to my brother and his fiance because even though the situation is different as Cayde and my nephew have completely different heart problems I know kind of how they feel. Handing your child over and not knowing when you are going to see them, and keeping complete faith in the doctors that they are going to take really good care of your child is hard. Right before they took him, I really did not know what to say to either of them, because in that moment there is nothing that anyone can say that will make them feel better. Its hard.
Bailey, Blaine, and Ely all start school the day after I do. The boys are really excited about getting to go to school, and so is Bailey. I have a feeling that I am going to turn into that mom who sits in the car crying for a while after dropping them all off to school for their first day. Chad I think is going to have just as hard of a time with it as I am, although he's not going to show it like I do. I am really scared about going back to school. With Caydence having signs of the pulmonary vein stenosis progressing, I am starting to wonder if going back to school is such a good idea. I know that in the long run this is going to be better for my whole family, but I am scared of what's going to happen. Chad is going to have to probably do more doctor visits and all of that as I really can't take much time away from school.
We go on monday to meet with the Neurologist to talk to them about these seizures that Caydence is having in her sleep. I am scared about what they are going to say. If it is an actual seizure disorder there is a chance that she could be disqualified for the transplant. But on the other hand if this is a progression of the PVS that's just as scary as we don't really have much information on it at all. I guess at this point we just wait and see what they say and go from there. We got the offical Transplant Listing letter in the mail for her Lung Transplant. That's a scary step too because now we know that is the direction that eventually we will be headed down. I just hope that it gets clearer as the time gets closer on exactly what we should do. There is so much unknown that it makes the decision that much harder.
So we are back to the old saying Live, Love, and Laugh often, as you never know if there is going to be another tomorrow.