Boy oh boy!

Now I by no means mean this in the wrong way, but wow, we really are not in Wyoming anymore. We have become really comfortable in the hospital in Denver, which under normal circumstances I would think weird to even hear coming out of my mouth, but reality for us is that we are often there because of Caydence's medical problems. The nurses there are wonderful people and always try to make it feel like home. With that being said WOW!! Texas is a much better place, and while I know there are going to be growing pains with us coming to a new place, I really didn't think that the transition to a new hospital would be this hard.

First I should start by saying that the hospital here is amazing with what they do for Children, but at the same time, the bedside manner here is lacking a little something. It kind of feels like they just do their job here and move on where as we are used to people who love their jobs. The doctors here on the other hand are wonderful people, and are doing everything within their capabilities of doing what needs to be done for my daughter.

They are letting her out of the hospital today, but we will be staying here in Houston. We are going to start the process of listing her on the lung transplant here, but since she is already listed in Saint Louis all of her time that she has built up on the list will still be there. So that means that she will on the top of the list when they offically get her listed here!

Thats the update for now. There really isnt much going on until we get the rest of the test results later in the week! Have a great day!

Really behind on this

So starting now I really am going to try harder at remembering to get on here and post things... Sometimes life gets in the way and I don't always have a chance to update.

We have started the Journey for Caydence to get her new lungs... what a weird thought if you think about it. I know that they have told us for a while now that eventually we were going to come to this point, but it still hasn't set in that we are here doing all of this. I'm starting to wonder if I am not going to have it sink in that this is really happening until we get the call and the page that they have found a donor for Caydence. It still amazes me every day at how well she is doing, and even more so when you have one of the best pulmonologists in the world that says the same thing. No one really understands how Caydence has done as well as she has, but I am truly thankful that she has.

I want every one to step back and take time to think about this... Are you an organ donor??!!?? If not you really should consider that option. If something horrible was to happen to you would you want to be able to save the life of another person. It's not something that people like to think about often, but it is something that you should consider. And if you do choose to be an organ donor make sure that your family knows those are your wishes.

Well thats what I have to say for today. We have a long road ahead of us, but I know that we will make it through as a family just fine... Just remember every day to tell those around you that you love them and that they are special to you, you never know when you are going to get that chance again!